Global Genes

From Unveiling Unicorns — educational information only.

What Is Global Genes?

Global Genes is a nonprofit organization that connects, empowers, and inspires the rare-disease community — patients, caregivers, advocates, and healthcare professionals around the world.

What Global Genes Offers

• Patient toolkits — step-by-step guides for the newly diagnosed, caregivers, and advocates
• RARE events — summits, webinars, and community gatherings (including the annual RARE Advocacy Summit)
• Educational resources — on genetic testing, clinical trials, care coordination, and storytelling for advocacy
• Community building — connecting rare-disease patients across diagnoses and geographies

When to Use Global Genes

• You want practical toolkits for navigating a new diagnosis
• You're a caregiver looking for support resources
• You want to learn advocacy skills (telling your story to policymakers, media, or researchers)
• You want to attend rare-disease community events

Official Link

• globalgenes.org — Global Genes

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Unveiling Unicorns is a 501(c)(3) nonprofit organization focused on raising awareness and providing resources for rare and chronic illnesses.